What a great day!!!

We had our annual and semiannual check up today for my daughter and myself. Everything went wonderful the EKG read outs on my daughter were clear no heart murmur. Her Ventricular septal defect had closed on its own. She will never have to go see a pediatric cardiologists again...except on my appointments. Mine went well as well, nothing funny for my valve check and only one instance where my pacemaker would have had to gone off way back in august. Nothing happening that I would need beta blockers. Just wonderful, so wonderful.

Pregnancy

I am worried about becoming pregnant again. The last one I was fine during the pregnancy but 2 1/2 months after her birth I ended up with a AICD. Now they are talking about putting me on Beta Blockers. Anyone have any experience with this? I go back and forth about our daughter being our only child. Do I keep clothes? or get rid of them? Is it worth it? If my defibillator go off, how does it affect my baby? What will the beta blockers do to the baby? And ultimately, will I and/or the baby make it through?

Check up Number 1

My daughter goes in next month for her 1 year check up on her Ventricular Septal Defect(VSD) next month. I remember when the pediatrician came in and told me he heard something wrong. I knew that it was not good. My husband and I had told him that I was born with mutliple heart conditions, so he make doubly sure he checked on her heart. He heard a faint murmur, one so faint that if he did not know about my conditions, he would not have heard it at all. One good thing was I knew who to see, and that they would take care of her. Luckily, her VSD is very close to the outer wall. Those usually close themselves in the first 2 years of life. Honestly, I had 2, an Atrial Septal Defect and VSD, and I do not know which one closed. I think it has to be the VSD since my patch is higher up.
Anxious to see what the outcome is.

Welcome

Welcome to Heart to Heart, the place for people to get together and talk about there or there children's Congenital Heart Defects. I myself have had multiple Congenital Heart Defects. Atrial Septal Defect, Ventriculr Septal Defect, Pulmonary Stenosis, Heart murmurs, and Tetrallogy of Fallot. I now have a Natural Cow valve instead of a Pulmonary Valve(Sept. 05'). November 13, 2007 I gave birth to 9 lb. 11 oz. 23 inch long baby girl. Taking my concern for her heart the Pediatrician checked her heart and found a extremely small murmur. She has a Ventricular Septal Defect. In February of 2008 I received my first AICD, pacemaker/defibillator, quite unexpectedly. I had gone into almost complete ventrical tachycardia. My heart rate stayed at/above 200 bpm for over 2 hours.

The purpose of this blog is for encouragement for parents out there that have children that have congential heart defects(CHD) and adults with CHD. To encourage one another and share there stories and experiences. To help educate parents and children about CHD's. I myself only know about my own heart defects, so I will have articles about the problems and studies showing the advancement of technology regarding CHDs.